Russ Novy 12/14/21 Russ Novy 12/14/21

Transition to Adulthood Study at University of Toronto and Transition to Adulthood Resources

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Charlene Rigby 6/26/21 Charlene Rigby 6/26/21

How your Child’s Medical History is a Tool Towards a Cure

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Charlene Rigby 5/22/21 Charlene Rigby 5/22/21

Love is Being an STXBP1 Grandparent

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Charlene Rigby 5/14/21 Charlene Rigby 5/14/21

Welcome STXBP1 Italia

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Charlene Rigby 4/25/21 Charlene Rigby 4/25/21

STXBP1 Foundation is Part of COMBINEDBrain To Speed Clinical Trial Readiness

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Charlene Rigby 4/13/21 Charlene Rigby 4/13/21

Ciitizen Natural History Study Starts Recruitment April 16

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Charlene Rigby 2/10/21 Charlene Rigby 2/10/21

4-Phenylbutyrate Clinical Trial Starting Recruitment

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Russ Novy 1/4/21 Russ Novy 1/4/21

STXBP1 Foundation 2020 Recap

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Russ Novy 11/2/20 Russ Novy 11/2/20

Our Life with Epilepsy

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Russ Novy 10/12/20 Russ Novy 10/12/20

Our 2nd Annual STXBP1 Awareness Month was a Huge Success... Because of You

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Charlene Rigby 8/5/20 Charlene Rigby 8/5/20

Updated Incidence of STXBP1

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Parent Perspective Russ Novy 6/22/20 Parent Perspective Russ Novy 6/22/20

A Message of Hope During COVID-19

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Russ Novy 3/4/20 Russ Novy 3/4/20

Rare Disease Day 2020 Recap

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SIFM 2019 Russ Novy 2/18/20 SIFM 2019 Russ Novy 2/18/20

STXBP1 Foundation 2019 Review

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Charlene Rigby 7/6/19 Charlene Rigby 7/6/19

Your Pearls of Wisdom – Advice From Parents

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SIFM 2019 Charlene Rigby 7/5/19 SIFM 2019 Charlene Rigby 7/5/19

What You Told Us at the Investigator and Family Meeting

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Parent Perspective Charlene Rigby 11/15/18 Parent Perspective Charlene Rigby 11/15/18

The Invisible Child

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Charlene Rigby 9/15/18 Charlene Rigby 9/15/18

PTSD in Special Needs Parenting

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Parent Perspective Charlene Rigby 8/28/18 Parent Perspective Charlene Rigby 8/28/18

A Tale of Two STXBP1 Journeys

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Charlene Rigby 10/16/17 Charlene Rigby 10/16/17

Get to Know Us

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