Million Dollar Bike Ride
Join Lulu’s Crew for the 2026 Million Dollar Bike Ride
Lulu’s Crew Team STXBP1 is back for the 2026 Million Dollar Bike Ride, and this year, the team is celebrating an extraordinary milestone: more than $1 million raised for STXBP1 research over the past seven years.
Led by STXBP1 parents Erin and Ben Prosser in honor of their daughter Lucy, Lulu’s Crew has become one of the STXBP1 Foundation’s most powerful community fundraising efforts. What began as one family’s determination to make a difference has grown into a movement of riders, donors, families, friends, and supporters pushing research forward for everyone impacted by STXBP1-related disorders.
On Saturday, June 13, 2026, Lulu’s Crew Team STXBP1 will ride again in Philadelphia as part of the Million Dollar Bike Ride, an annual fundraiser hosted by the Orphan Disease Center at the University of Pennsylvania’s Perelman School of Medicine. Participants can ride in person or virtually, with route options of 10, 34, 50, or 72 miles.
Every dollar raised by Lulu’s Crew Team STXBP1 supports research. Funds from the ride help provide seed grants to scientists working to better understand STXBP1-related disorders and accelerate progress toward meaningful treatments and cures.
The need for research remains urgent. STXBP1-related disorders can cause severe intellectual disability, epilepsy, movement challenges, low muscle tone, autism, vision issues, and other complex medical and developmental needs. Families continue to push forward through difficult moments because they know progress is possible, and because children like Lucy deserve every chance at a brighter future.
You can be part of Lulu’s Crew by riding, donating, fundraising, or cheering the team on. Whether you join in Philadelphia, ride virtually, or make a gift, your support helps move STXBP1 research forward.
Click here to learn more, register, or donate to Lulu’s Crew Team STXBP1.
The Million Dollar Bike Ride is a signature event for the STXBP1-related disorders community.
The annual challenge brings over 750 fundraising-cyclists and volunteers to the University of Pennsylvania’s campus to ride 10, 32 or 70 miles around University City, Philadelphia. Teams can enter to represent individual rare diseases and receive matching funds for research into those conditions. The full amount raised goes to support the annual research grants.
Read about the origins of the ride in this article to learn more.
