2025 STXBP1 Summit+

Registration is Open

Join us for this year’s conference,"Trailblazing Together", from July 18-20, 2025 at the Westin Westminster Conference Center & Hotel in Westminster, CO. Attend in-person or watch the Saturday full-day livestream on our YouTube channel as we return to Colorado for our Family Meeting.

Register Now

Agenda at a Glance

Friday, July 18
Afternoon - Registration & Research Opportunities
Evening - Family Social Opportunities

Saturday, July 19 - Research opportunities throughout the day
Breakfast for all attendees
Presentations and Sessions (Lunch included)
Dinner & Dance Party

Sunday, July 20 - Research opportunities in the morning
Breakfast for all attendees
Morning - Family Support Sessions & Closing Session (over by 12:00)

Exact times for each day to be announced

Don’t Miss These Talks

Gene Therapy Development in the Lab – Mingshan Xue, PhD
Clinical Trials & Preparation for Patient Families – Scott Demarest, MD
SYNRGY Gene Therapy Clinical Trial Information – Capsida Biotherapeutics
"How to Handle More Than You Can Handle" – Reconnecting with Yourself After a Rare Disease Diagnosis – Amanda Griffith-Atkins, MS, LMFT & Special Needs Parent
and more …

Summit+ Family Meeting Details

STARR Appointments can be scheduled at the CO clinic on Thursday 7/17 or Monday 7/21
(The Friday 7/18 slots are filled)
learn more about our STARR Natural History Study here
Volunteer Help Wanted - contact Melissa Hioco
Sponsorship Opportunities - available now
Questions? - reach out to Melissa Hioco

Room Reservations at the Westin Westminster

Room Reservations at the Westin Westminster Hotel are available July 17-21, 2025 at our discounted rate of $179 for a standard room. Reservations can be made here.