2025 STXBP1 Summit+

Register for the Livestream!

Join us for this year’s conference,"Trailblazing Together", from July 18-20, 2025 at the Westin Westminster Conference Center & Hotel in Westminster, CO. Not able to join us in Colorado… No Problem!! In person registration is now closed, but we hope you will join us virtually as we live stream ALL of the sessions on Saturday, July 19. Click below to register for the live stream here and receive a direct email with all the details.

The STXBP1 Summit+ Family Meeting sessions on Saturday will also be recorded, and the recordings will be available 1-2 weeks after the summit.

Register For Livestream Now

Agenda at a Glance

Friday, July 18
Afternoon - Registration & Research Opportunities
Evening - Family Social Opportunities

Saturday, July 19 - Research opportunities throughout the day
Breakfast for all attendees
Presentations and Sessions (Lunch included)
Dinner & Dance Party

Sunday, July 20 - Research opportunities in the morning
Breakfast for all attendees
Morning - Family Support Sessions & Closing Session (over by 12:00)

Agenda subject to change

See Full Agenda

Don’t Miss These Talks

Gene Therapy Development in the Lab – Mingshan Xue, PhD
Clinical Trials & Preparation for Patient Families – Scott Demarest, MD
SYNRGY Gene Therapy Clinical Trial Information – Capsida Biotherapeutics
"How to Handle More Than You Can Handle" – Reconnecting with Yourself After a Rare Disease Diagnosis – Amanda Griffith-Atkins, MS, LMFT & Special Needs Parent
and more …

See and Download Full Agenda

Summit+ Family Meeting Details

STARR Appointments can be scheduled at the CO clinic on Thursday 7/17 or Monday 7/21
(The Friday 7/18 slots are filled)
learn more about our STARR Natural History Study here
Volunteer Help Wanted - contact Melissa Hioco
Sponsorship Opportunities - available now
Questions? - reach out to Melissa Hioco

Room Reservations at the Westin Westminster

Room Reservations at the Westin Westminster Hotel are available July 17-21, 2025 at our discounted rate of $179 for a standard room. Reservations can be made here.