2025 STXBP1 Summit+

Another Impactful Summit+

Thank you to everyone who joined in for our annual STXBP1 Summit+ Family Meeting this past July 18-20, 2025 in Westminster, CO. With over 200 STX families, researchers, and industry partners onsite we held another meaningful gathering to share scientific breakthroughs and heartfelt journeys while building stronger connections. And, everyone can revisit the eventful 3 days through the links below.

Five people standing on a stage with a blue and white patterned backdrop, posing for a photo. Two women, one man holding a clear award or plaque, a young girl, and a man in a green t-shirt.
A woman speaking at a podium during the STXBP1 Summit+ Family Meeting, with a sign displaying sponsor logos like Biogen, BiomarIn, and AmyGen, in a conference setting with dark blue and white geometric background panels.
Two women and two young boys sitting on a grassy field during daytime, engaging in a playful activity with a colorful beach ball. One woman wears a white hat and white shirt, the other woman has glasses and a navy top. The boys are casually dressed, with one wearing a blue T-shirt and orange cape, and the other in a black graphic T-shirt. There are white markers or objects on the grass behind them.

Post Show Links

Recap Blog Post

Session Recordings

Livestream Recording

Conference Photos

Full Agenda

STXBP1 STARR Natural History Studies Ran Concurrent to the Summmit+

Thanks to all our families who were able to hold their STARR appointments at the CO clinic before and after the conference.
You can learn more about our STARR Natural History Study here.

Children's Hospital Colorado building with a sign indicating it is in the top 10 in the nation for putting kids first, outdoors with trees, grass, and umbrellas.

The conference was held at the Westin Westminster again 

This was the second time we held our conference at the Westin Westminster Hotel and we were happy to be back.

The Westin hotel building with multiple floors, illuminated windows, and a mountain range in the background at dusk.
A thank you message for sponsors with a list of biotech and pharmaceutical companies, including Biogen, Biomarin, Capsida, Bial, Amgen, and Searchlight, against a light blue mountainous background with trees and clouds.
A large group photo of diverse people, including children and adults, gathered on a stage at a conference or event. The background has black curtains, balloons, American flags, and signage indicating the event is related to STXBP1 disorder. Everyone is smiling and facing the camera.

Haven’t been to an STXBP1 Summit+ in person yet?

See what’s it’s like by visiting our 2024 archived pages which has plenty of photos, videos, session recordings, awards, and more.

Thank You from our Kids

Videos courtesy of Sherry Chapman