The Science is Speaking. Are You Listening?
The STXBP1 Summit: Powered By Hope
Community Message from The Board
Strides in STXBP1 Research: March
Join us for an STXBP1 Community Conversation
Connect with STXBP1 Foundation leadership and fellow STXBP1 parents for a meaningful time of conversation
CNBC Cures Advances Awareness and Understanding of Rare Diseases
Strides in STXBP1 Research: Feb
Introducing STXBP1 Japan: Building Awareness, Connection, and Hope
Strides in STXBP1 Research: Jan 2026
EMERALD Study for relutragine from Praxis
DEEp OCEAN Study for bexicaserin from Lundbeck
Strides in STXBP1 Research: December 2025
Highlights from the 2025 STXBP1 Researcher Roundtable
Hope Through Heartbreak: Reflecting on 2025
Support the National Plan for Epilepsy in the U.S.
Highlights from the 2025 American Epilepsy Society Meeting
Strides in STXBP1 Research: Oct & Nov
Action Alert! Letters to US Congress Members and Senators Needed Now
New Safety and SUDEP Resources Available on SUDEP Action Day 2025