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STXBP1 Foundation
What is STXBP1?
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News
Blog
Newsletter
Podcasts
Events
Summit+ 2026
Researcher Roundtable 2026
September Awareness Month
Move To Cure
Million Dollar Bike Ride
Past Conferences
Patient-Focused Drug Development Meeting
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
About
Team
Scientific Advisory Board
Census
STXBP1 Film
Fast Forward Strategic Plan
Financials
Contact
About STXBP1
Search
Donate
What is STXBP1?
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Newly Diagnosed
Register in our Contact List
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Glossary
VIP Siblings Kits
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Back
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
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Million Dollar Bike Ride Grants for STXBP1
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Strides in STXBP1 Research: March
Russ Novy 4/7/26 Russ Novy 4/7/26

Strides in STXBP1 Research: March

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Join us for an STXBP1 Community Conversation
Jared Barnum 4/6/26 Jared Barnum 4/6/26

Join us for an STXBP1 Community Conversation

Connect with STXBP1 Foundation leadership and fellow STXBP1 parents for a meaningful time of conversation

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CNBC Cures Advances Awareness and Understanding of Rare Diseases
Russ Novy 3/5/26 Russ Novy 3/5/26

CNBC Cures Advances Awareness and Understanding of Rare Diseases

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Strides in STXBP1 Research: Feb
Russ Novy 3/5/26 Russ Novy 3/5/26

Strides in STXBP1 Research: Feb

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Introducing STXBP1 Japan: Building Awareness, Connection, and Hope
Mark Quinlan 2/10/26 Mark Quinlan 2/10/26

Introducing STXBP1 Japan: Building Awareness, Connection, and Hope

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Strides in STXBP1 Research: Jan 2026
Russ Novy 2/6/26 Russ Novy 2/6/26

Strides in STXBP1 Research: Jan 2026

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EMERALD Study for relutragine from Praxis
James Goss 1/26/26 James Goss 1/26/26

EMERALD Study for relutragine from Praxis

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DEEp OCEAN Study for bexicaserin from Lundbeck
Charlene Rigby 1/20/26 Charlene Rigby 1/20/26

DEEp OCEAN Study for bexicaserin from Lundbeck

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Strides in STXBP1 Research: December 2025
Russ Novy 1/7/26 Russ Novy 1/7/26

Strides in STXBP1 Research: December 2025

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Highlights from the 2025 STXBP1 Researcher Roundtable
James Goss 12/22/25 James Goss 12/22/25

Highlights from the 2025 STXBP1 Researcher Roundtable

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Hope Through Heartbreak: Reflecting on 2025
Charlene Rigby 12/14/25 Charlene Rigby 12/14/25

Hope Through Heartbreak: Reflecting on 2025

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Support the National Plan for Epilepsy in the U.S.
Russ Novy 12/10/25 Russ Novy 12/10/25

Support the National Plan for Epilepsy in the U.S.

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Highlights from the 2025 American Epilepsy Society Meeting
Russ Novy 12/8/25 Russ Novy 12/8/25

Highlights from the 2025 American Epilepsy Society Meeting

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Strides in STXBP1 Research: Oct & Nov
Russ Novy 12/2/25 Russ Novy 12/2/25

Strides in STXBP1 Research: Oct & Nov

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Action Alert! Letters to US Congress Members and Senators Needed Now
Russ Novy 10/31/25 Russ Novy 10/31/25

Action Alert! Letters to US Congress Members and Senators Needed Now

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New Safety and SUDEP Resources Available on SUDEP Action Day 2025
Russ Novy 10/14/25 Russ Novy 10/14/25

New Safety and SUDEP Resources Available on SUDEP Action Day 2025

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Strides in STXBP1 Research in Aug and Sep
Russ Novy 10/1/25 Russ Novy 10/1/25

Strides in STXBP1 Research in Aug and Sep

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From Heartbreak to Action
Russ Novy 9/25/25 Russ Novy 9/25/25

From Heartbreak to Action

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Clinical Trials and Sharing Personal Experiences
Charlene Rigby 8/16/25 Charlene Rigby 8/16/25

Clinical Trials and Sharing Personal Experiences

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Strides in STXBP1 for June and July
Russ Novy 8/4/25 Russ Novy 8/4/25

Strides in STXBP1 for June and July

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Older Posts

About Us

The STXBP1 Foundation is a parent-led 501(c)3 non-profit (EIN #82-1439459). We are dedicated to creating awareness and finding a cure for STXBP1 disorders.

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