Russ Novy 5/12/25 Russ Novy 5/12/25

STXBP1 Foundation President and Executive Director Comment on Capsida's FDA Approval to Start Gene Therapy Clinical Trial

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Russ Novy 5/8/25 Russ Novy 5/8/25

Strides in STXBP1 April

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Russ Novy 4/11/25 Russ Novy 4/11/25

Purple Day Expo at Disney

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Russ Novy 4/9/25 Russ Novy 4/9/25

5 Marathons in 5 Days for Charlie

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Russ Novy 4/7/25 Russ Novy 4/7/25

Strides in STXBP1 Research March

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Russ Novy 3/6/25 Russ Novy 3/6/25

Rare on the Hill 2025 Report

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Russ Novy 3/5/25 Russ Novy 3/5/25

Strides in STXBP1 Research Jan/Feb

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Russ Novy 2/25/25 Russ Novy 2/25/25

Update on FDA-NIH Rare Disease Day 2025

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Russ Novy 2/15/25 Russ Novy 2/15/25

A Huge Thanks to Jack Mann of the Glasgow Warriors

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Russ Novy 2/10/25 Russ Novy 2/10/25

Welcome Jocelyn Knight from UPenn’s Masters in Genetic Counseling Program

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Russ Novy 1/30/25 Russ Novy 1/30/25

Capsida Clinical Trial Information

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Russ Novy 1/21/25 Russ Novy 1/21/25

Bedankt (NL) / Thank You (EN)

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Russ Novy 1/10/25 Russ Novy 1/10/25

Strides in STXBP1 Research December 2024

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Charlene Rigby 12/22/24 Charlene Rigby 12/22/24

STXBP1 Community Activation: Reflections on 2024

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Russ Novy 12/18/24 Russ Novy 12/18/24

American Epilepsy Society 2024 Conference Recap

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Russ Novy 12/15/24 Russ Novy 12/15/24

New Observational Study on Seizure or Seizure-like Movements Now Recruiting

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Russ Novy 12/12/24 Russ Novy 12/12/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

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Russ Novy 11/6/24 Russ Novy 11/6/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

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Russ Novy 10/20/24 Russ Novy 10/20/24

Targeted Stabilization of Munc18-1 function via pharmacological chaperones

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Russ Novy 10/6/24 Russ Novy 10/6/24

STXBP1 Awareness Month Really Got Moving in Germany

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