Russ Novy 1/8/26 Russ Novy 1/8/26

Community Update – Capsida Clinical Trial

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Russ Novy 12/22/25 Russ Novy 12/22/25

Rare development disorder hasn’t kept Wellesley swimmer from varsity

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Russ Novy 11/5/25 Russ Novy 11/5/25

STXBP1 Foundation Expands STARR Natural History Study with New Site at Rush University Medical Center

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Russ Novy 10/28/25 Russ Novy 10/28/25

STXBP1 Foundation Awards Innovation Grant to Helen Willsey for Gene Therapy Development

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Russ Novy 10/14/25 Russ Novy 10/14/25

STXBP1 Foundation Awards Innovation Grant to Soo-Kyung Lee for Gene Therapy Development

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Russ Novy 10/7/25 Russ Novy 10/7/25

STXBP1 Foundation Awards Innovation Grant to Scott Baraban for High-throughput Drug Screen in Zebrafish

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Russ Novy 9/30/25 Russ Novy 9/30/25

STXBP1 Foundation Awards Innovation Grant to Kyle Fink for CRISPR activation Gene Therapy

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Charlene Rigby 9/26/25 Charlene Rigby 9/26/25

STXBP1 has an ICD-10 Code!

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Mark Quinlan 9/12/25 Mark Quinlan 9/12/25

A Message From The Family…

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Russ Novy 9/10/25 Russ Novy 9/10/25

A Difficult Community Update – Capsida Clinical Trial

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