STXBP1 Awareness Month

September is STXBP1 Awareness Month

We continue to recognize September as STXBP1 Awareness Month and we have a lot of exciting things planned. Keep a close eye on our social media pages for a blitz of ongoing communications and activities.

Also, don’t forget you can relive our annual Summit + conference to view the session recordings.

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Our Move to Cure walk has been the biggest event for the past few years and is a great way to help raise awareness of STXBP1 disorders and raise funds to continue the amazing work being done to further science and medicine towards better understanding of the disorder and treatments for our community.

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What’s happening throughout the month

  • Annual “Move to Cure” Run

  • STXBP1 Summit + video recordings

  • Regular Social Media Updates

  • Community Spotlights

  • And lots more …

Did You Know?

Here’s the most current information on STXBP1 Disorders formatted as “Did You Know…” cards that are easily sharable on social media. Please help spread our info by posting these 11 cards throughout the month!

Download the whole set from the links below or get each individual card in the English version here.

English
Spanish
Portuguese
German
Dutch
French
Italian
Polish
Slovak
Chinese