Russ Novy 11/1/24 Russ Novy 11/1/24

FDA Grants Orphan Drug Designation to Capsida Biotherapeutics for Potential Treatment of STXBP1 Developmental and Epileptic Encephalopathy

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Russ Novy 10/15/24 Russ Novy 10/15/24

Advancing Toward Gene Therapies for Rare Epilepsies

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Russ Novy 10/2/24 Russ Novy 10/2/24

Newly Published “Voice of the Patient Report”

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Charlene Rigby 9/30/24 Charlene Rigby 9/30/24

STXBP1 Census - Q3 2024

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Russ Novy 9/19/24 Russ Novy 9/19/24

Six patient advocacy groups collaborate to co-fund a single-center observational study of seizure types in rare genetic epilepsies

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Russ Novy 8/20/24 Russ Novy 8/20/24

NPR Stateside Podcast: One family's fight to find a cure for daughter's rare genetic disorder

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Russ Novy 7/30/24 Russ Novy 7/30/24

Glowing reviews for STXBP1-Related Disorders Research

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Russ Novy 7/17/24 Russ Novy 7/17/24

The STXBP1 Foundation and Children’s Hospital of Philadelphia Announce Phase 2 of the STARR Study for Clinical Trial Readiness, and Clinic Expansion

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Charlene Rigby 7/5/24 Charlene Rigby 7/5/24

STXBP1 Census - Q2 2024

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Russ Novy 5/20/24 Russ Novy 5/20/24

Over 3,000 People Have Signed our Petition to the CDC for an ICD-10 Code

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