Charlene Rigby 1/31/21 Charlene Rigby 1/31/21

Orphan Disease Center 2020 Million Dollar Bike Ride Grant Awards Announced

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Russ Novy 11/23/20 Russ Novy 11/23/20

Rare Epilepsy Network (REN) Gets to Know STXBP1

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Charlene Rigby 11/17/20 Charlene Rigby 11/17/20

NORD Profiles STXBP1 Foundation President in Head of the Herd

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Charlene Rigby 10/3/20 Charlene Rigby 10/3/20

STXBP1 Foundation President Presents at Healx Webinar

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Russ Novy 8/21/20 Russ Novy 8/21/20

The STXBP1 Foundation is a NORD Platinum Member organization

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Russ Novy 8/8/20 Russ Novy 8/8/20

Dr Zach Grinspan Receives Pilot Grants To Fund STXBP1 Encephalopathy Intervention Research at Weill Cornell Medicine

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Russ Novy 8/8/20 Russ Novy 8/8/20

Michael Boland & Wayne Frankel Receive SFARI 2020 Research Grant

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Charlene Rigby 7/3/20 Charlene Rigby 7/3/20

Claire Jacobs Awarded AES Grant to Study STXBP1

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Charlene Rigby 7/2/20 Charlene Rigby 7/2/20

Jaxson’s Story: Using Telemedicine to Reach Children With Rare Genetic Epilepsies

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Russ Novy 5/8/20 Russ Novy 5/8/20

Lucy’s Story: Going All In to Cure a Rare Disease

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