Rare Epilepsy Network (REN) Gets to Know STXBP1

The Rare Epilepsy Network (REN) welcomes the STXBP1 Foundation and gets to know us through a profile presented by our President and Founding Board Member, Charlene Son Rigby.

Read the full interview here.

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Orphan Disease Center 2020 Million Dollar Bike Ride Grant Awards Announced

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NORD Profiles STXBP1 Foundation President in Head of the Herd