Russ Novy 2/3/22 Russ Novy 2/3/22

EURORDIS Welcomes STXBP1 Disorders to its Association

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Russ Novy 1/12/22 Russ Novy 1/12/22

Charles Chen Wins Young Investigators Award for STXBP1 Research

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Charlene Rigby 1/8/22 Charlene Rigby 1/8/22

Orphan Disease Center 2021 Million Dollar Bike Ride Grant Awards Announced

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Russ Novy 12/20/21 Russ Novy 12/20/21

The STXBP1 Foundation announces a new grant awarded of $154,753 to the Heller Laboratory of Neuroepigenetics at the University of Pennsylvania

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Russ Novy 12/13/21 Russ Novy 12/13/21

The STXBP1 Foundation has provided $50,000 in funding to Children’s Hospital of Philadelphia (CHOP) to develop a Disease Concept Model for STXBP1 disorders

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Russ Novy 10/20/21 Russ Novy 10/20/21

STXBP1 Foundation Awards 2 research grants to researchers at Columbia’s Institute for Genomic Medicine

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Charlene Rigby 9/14/21 Charlene Rigby 9/14/21

Rarebase launches a neuroscience drug discovery platform collaborating with STXBP1 Foundation and 14 other rare disease patient organizations

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Charlene Rigby 5/22/21 Charlene Rigby 5/22/21

COMBINEDBrain and Duke University team up to receive a prestigious FDA grant

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Charlene Rigby 4/15/21 Charlene Rigby 4/15/21

STXBP1 Foundation and Ciitizen Partner on Natural History Study, Study Starts Recruitment April 16

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Charlene Rigby 2/20/21 Charlene Rigby 2/20/21

4-Phenylbutyrate Clinical Trial Starting Recruitment

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