2026 STXBP1 Summit+

Registration is Now Open

Meeting at a Glance

Friday, July 17
Afternoon - Registration 
Evening - Dinner, Awards & Dance Party

Saturday, July 18
Breakfast for all attendees
Presentations and Sessions (Lunch included)

Sunday, July 19 
Breakfast for all attendees
Morning - Family Support Sessions & Closing Session (ending by 12:00)


The conference will be held at the Hilton Philadelphia at Penn's Landing

We are looking forward to bringing our community together again at this year’s STXBP1 Summit+. And, we have a room block reserved at Hilton Philadelphia at Penn's Landing for July 15, 2026 through July 20, 2026. Booking your room is simple, just select "Book a Room" to receive our group's preferred rate.

We know travel costs are real, and we're committed to offering support where we can while keeping the Summit sustainable. 

Hotel and event costs are significantly higher this year, so we are unable to offer full family scholarships as we have in the past. We understand that this may affect planning for some families, and we want to share the steps we’re taking to help offset expenses.To provide support, we are pleased to offer:

  •  A $50 per night hotel credit for the primary caregiver’s room, for up to two nights, at the Hilton Philadelphia at Penn's Landing Hotel

  • One complimentary parking voucher for one day of parking in the Hilton Philadelphia Penn's Landing Hotel parking structure. Any additional days of parking will be at a reduced rate.

In addition, we have created a Family Travel Support Document that includes organizations who may be able to assist with travel expenses to the Summit.

Thank you for your continued partnership—we look forward to connecting with you in person this summer!

Questions???

Please email - melissa.hioco@stxbp1disorders.org

What to Expect at the Summit+

  • Presentations from STXBP1 experts 

  • Social opportunities for kids & families

  • Dinner & Dance party for ALL

  • Family hospitality room with toys & streaming live presentations

  • Private changing room

  • Sibling room & activities

  • Private genetic counseling appointments

  • Research opportunities



Haven’t been to an STXBP1 Summit+ in person yet?

See what’s it’s like by visiting our archived pages which has plenty of photos, videos, session recordings, awards, and more.