New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1

Written By Charlene Rigby

Encoded Therapeutics is launching a research project called STXBP1 ENGAGE to learn about children’s experiences living with STXBP1. The study is open to families in Australia, Canada, Spain, UK and US, with a child living with STXBP1 who is 8 years of age or younger.

Learn more about the STXBP1 ENGAGE study:

STXBP1 ENGAGE flyer in English

STXBP1 ENGAGE flyer in Spanish

Link to screening questionnaire:

English: https://eu.research.net/r/STXBP1

Spanish: https://eu.research.net/r/ES-STXBP1

Charlene Rigby
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