Support the National Plan for Epilepsy in the U.S.

A National Plan for Epilepsy in the U.S. is needed to bring more attention, support, and resources to the entire epilepsy community – which includes STXBP1-related disorders.

The Epilepsy Caucus Co-chairs, Senators Eric Schmitt (R-MO) & Amy Klobuchar (D-MN) and Representatives Jim Costa (D-CA-21) & Greg Murphy, MD (R-NC-03), recently reintroduced the National Plan for Epilepsy Act (S. 494/H.R. 1189) and we can help get the Act passed.

All of us - people living with epilepsy, caregivers, clinicians, researchers, and advocates - must work together to urge Members of Congress to cosponsor and pass the bill. Take action TODAY and ask your elected officials to support and cosponsor the National Plan for Epilepsy! If your elected official is already a sponsor, you will be able to send them a thank-you message instead. Use the link here to quickly look up your members in both the House and Senate, personalize the message if you wish, and easily send it in just a few clicks! We strongly encourage you to share your own personal experience as a member of the epilepsy community. More personalized comments can have significantly more impact.  

What can you do?   Just send a letter.  Today.  Please ask your federal reps to support the “National Plan for Epilepsy” ASAP!  Just follow this link and complete the letter form on the right. 

What else can you do?  Please share this information with your friends and family.  Ask them to send letters, too!

Advocacy + Funding = Increased Research and Treatments