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Million Dollar Bike Ride

The Million Dollar Bike Ride is a signature event for the STXBP1-related disorders community.

The annual challenge brings over 750 fundraising-cyclists and volunteers to the University of Pennsylvania’s campus to ride 10, 32 or 70 miles around University City, Philadelphia. Teams can enter to represent individual rare diseases and receive matching funds for research into those conditions.

This is the 8th year Lulu’s Crew Team STXBP1 is riding and last year they hit a HUGE milestone of raising $1 million since their start.

Learn all about this impactful fundraising campaign and how you can help on this detailed page here.

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May 11

American Society of Gene & Cell Therapy

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July 16

2026 STXBP1 Summit+