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September is STXBP1 Disorders Awareness Month


Get ready for all-things STXBP1 Disorders. This is our third year of dedicating the entire month of September for STXBP1 Disorders with tons of activities. We’ll work together to create even more awareness for this rare genetic disorder, share the very latest updates on research, and bring the community together virtually again. See more.

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June 12

Million Dollar Bike Ride

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September 17

STXBP1 Summit + Annual Family Meeting