New STXBP1 Caregiver Survey to Help Advance Clinical Trial Readiness

The STXBP1 Foundation and ESCO are pleased to announce an upcoming international caregiver survey designed to better understand the experiences, priorities, and needs of families affected by STXBP1-related disorders. Launching September 15, the survey will help inform clinical trial readiness efforts and ensure that the perspectives of patients and caregivers remain central as research and therapeutic development continue to advance. We are excited to share this announcement as we begin STXBP1 Awareness Month and look ahead to another important opportunity for our global community to help shape the future of STXBP1 research.