0
Skip to Content
STXBP1 Foundation
What is STXBP1?
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News
Blog
Newsletter
Podcasts
September Awareness Month
Move To Cure
2025 Summit+
Million Dollar Bike Ride
Events
Past Conferences
Patient-Focused Drug Development Meeting
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
STXBP1 Advocates
Collateral & Brand
Store
About
Team
Scientific Advisory Board
Census
STXBP1 Film
Fast Forward Strategic Plan
Financials
Contact
About STXBP1
Search
Donate
STXBP1 Foundation
What is STXBP1?
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News
Blog
Newsletter
Podcasts
September Awareness Month
Move To Cure
2025 Summit+
Million Dollar Bike Ride
Events
Past Conferences
Patient-Focused Drug Development Meeting
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
STXBP1 Advocates
Collateral & Brand
Store
About
Team
Scientific Advisory Board
Census
STXBP1 Film
Fast Forward Strategic Plan
Financials
Contact
About STXBP1
Search
Donate
What is STXBP1?
Folder: Patients & Families
Back
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Folder: Researchers
Back
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
Folder: News & Events
Back
News
Blog
Newsletter
Podcasts
September Awareness Month
Move To Cure
2025 Summit+
Million Dollar Bike Ride
Events
Past Conferences
Patient-Focused Drug Development Meeting
Folder: Get Involved
Back
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
STXBP1 Advocates
Collateral & Brand
Store
Folder: About
Back
About
Team
Scientific Advisory Board
Census
STXBP1 Film
Fast Forward Strategic Plan
Financials
Contact
About STXBP1
Search
Donate
STXBP1 Foundation President Profiled as Global Genes Rare Leader
Charlene Rigby 12/19/19 Charlene Rigby 12/19/19

STXBP1 Foundation President Profiled as Global Genes Rare Leader

Read More
1st Research Funding Award
Charlene Rigby 11/28/19 Charlene Rigby 11/28/19

1st Research Funding Award

Read More
Newer Posts

About Us

The STXBP1 Foundation is a parent-led 501(c)3 non-profit (EIN #82-1439459). We are dedicated to creating awareness and finding a cure for STXBP1 disorders.

Email

info@stxbp1disorders.org

Info

About
Newly Diagnosed
Clinical Trials and Research
News
Events
Blog

Action

Join Parent Contact List
Contact
Donate
Sign Up for Our Newsletter

Privacy Policy • Policy on Discrimination • Community Participation Guidelines

© 2025 STXBP1 Foundation. All rights reserved.