Russ Novy 8/21/20 Russ Novy 8/21/20

The STXBP1 Foundation is a NORD Platinum Member organization

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Russ Novy 8/8/20 Russ Novy 8/8/20

Dr Zach Grinspan Receives Pilot Grants To Fund STXBP1 Encephalopathy Intervention Research at Weill Cornell Medicine

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Russ Novy 8/8/20 Russ Novy 8/8/20

Michael Boland & Wayne Frankel Receive SFARI 2020 Research Grant

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Charlene Rigby 7/3/20 Charlene Rigby 7/3/20

Claire Jacobs Awarded AES Grant to Study STXBP1

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Charlene Rigby 7/2/20 Charlene Rigby 7/2/20

Jaxson’s Story: Using Telemedicine to Reach Children With Rare Genetic Epilepsies

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Russ Novy 5/8/20 Russ Novy 5/8/20

Lucy’s Story: Going All In to Cure a Rare Disease

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Russ Novy 2/24/20 Russ Novy 2/24/20

Stxbp1/Munc18-1 haploinsufficiency impairs inhibition and mediates key neurological features of STXBP1 encephalopathy

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Charlene Rigby 1/9/20 Charlene Rigby 1/9/20

Orphan Disease Center Million Dollar Bike Ride Grant Awards

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Charlene Rigby 12/19/19 Charlene Rigby 12/19/19

STXBP1 Foundation President Profiled as Global Genes Rare Leader

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Charlene Rigby 11/28/19 Charlene Rigby 11/28/19

1st Research Funding Award

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