Unlocking STXBP1 through Electronic Medical Records

Russ Novy 11/9/22 Russ Novy 11/9/22

Unlocking STXBP1 through Electronic Medical Records

Read More

The 2022 STXBP1 Summit – a personal reflection by Dr. Ingo Helbig

Russ Novy 9/7/22 Russ Novy 9/7/22

The 2022 STXBP1 Summit – a personal reflection by Dr. Ingo Helbig

It is not an exaggeration to say that STXBP1 is on the map in 2022 and it is one of the genes with the fastest growing knowledge.

Read More

Grants available for research on therapeutic development for STXBP1 disorders

Jared Barnum 9/2/22 Jared Barnum 9/2/22

Grants available for research on therapeutic development for STXBP1 disorders

Read More

$85K Raised at FCL Builders Golf Tournament!

Jared Barnum 8/14/22 Jared Barnum 8/14/22

$85K Raised at FCL Builders Golf Tournament!

Read More

STXBP1 Disorders Featured on Detroit's NPR station

Russ Novy 8/5/22 Russ Novy 8/5/22

STXBP1 Disorders Featured on Detroit's NPR station

Read More

Annual Report 2021 Published

Charlene Rigby 2/15/22 Charlene Rigby 2/15/22

Annual Report 2021 Published

Read More

STXBP1 Foundation Participates in Rare Disease Awareness Month

Russ Novy 2/10/22 Russ Novy 2/10/22

STXBP1 Foundation Participates in Rare Disease Awareness Month

Read More

EURORDIS Welcomes STXBP1 Disorders to its Association

Russ Novy 2/3/22 Russ Novy 2/3/22

EURORDIS Welcomes STXBP1 Disorders to its Association

Read More

Charles Chen Wins Young Investigators Award for STXBP1 Research

Russ Novy 1/12/22 Russ Novy 1/12/22

Charles Chen Wins Young Investigators Award for STXBP1 Research

Read More

Charlene Rigby 1/8/22 Charlene Rigby 1/8/22

Orphan Disease Center 2021 Million Dollar Bike Ride Grant Awards Announced

Read More