Orphan Disease Center 2023 Million Dollar Bike Ride Grants - $150,920 for STXBP1 Research Awarded
Uplifting Athletes and STXBP1 Foundation Fund $20,000 Grant to Dr. Noah Guiberson at Weill Cornell Medicine
STXBP1 Census - Q4 2023
Immedica granted orphan designation for glycerol phenylbutyrate in STXBP1-related disorders
STXBP1 Foundation NAMED “2023 TOP-RATED NONPROFIT” by GreatNonprofits
In The News: An Unstoppable Spirit
Feature article in the Wicked Local website from October 5, 2023
Sharing the Voice of The STXBP1 Community with the FDA!
STXBP1 Census - Q3 2023
In The News: How an STXBP1-related Disorder Diagnosis Changes a Dodgers Pitcher's Life
Mainstream media coverage of STXBP1 disorders during September Awareness Month
STXBP1 Foundation Announces STARR Study for Clinical Trial Readiness
Learn more about the STXBP1 study and US clinics