0
Skip to Content
STXBP1 Foundation
What is STXBP1?
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News
Blog
Newsletter
Podcasts
Events
Summit+ 2026
September Awareness Month
Move To Cure
Million Dollar Bike Ride
Past Conferences
Patient-Focused Drug Development Meeting
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
About
Team
Scientific Advisory Board
Strategic Plan - Fast Forward to Impact
Therapeutic Pipeline
Census
STXBP1 Film
Financials
Contact
About STXBP1
Search
Donate
STXBP1 Foundation
What is STXBP1?
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News
Blog
Newsletter
Podcasts
Events
Summit+ 2026
September Awareness Month
Move To Cure
Million Dollar Bike Ride
Past Conferences
Patient-Focused Drug Development Meeting
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
About
Team
Scientific Advisory Board
Strategic Plan - Fast Forward to Impact
Therapeutic Pipeline
Census
STXBP1 Film
Financials
Contact
About STXBP1
Search
Donate
What is STXBP1?
Folder: Patients & Families
Back
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Clinicians
Family Resources
Clinics
Global Connect
Partners in Advocacy
The Scientific Director's Corner
Glossary
VIP Siblings Kits
Folder: Researchers
Back
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
Folder: News & Events
Back
News
Blog
Newsletter
Podcasts
Events
Summit+ 2026
September Awareness Month
Move To Cure
Million Dollar Bike Ride
Past Conferences
Patient-Focused Drug Development Meeting
Folder: Get Involved
Back
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
Folder: About
Back
About
Team
Scientific Advisory Board
Strategic Plan - Fast Forward to Impact
Therapeutic Pipeline
Census
STXBP1 Film
Financials
Contact
About STXBP1
Search
Donate
Strides in STXBP1: What Happened Last Month in STXBP1 Research?
Russ Novy 5/9/24 Russ Novy 5/9/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

Read More
People Magazine Feature Article on Flo
Russ Novy 5/8/24 Russ Novy 5/8/24

People Magazine Feature Article on Flo

Read More
Encoded Therapeutics highlights progress of preclinical programs for including STXBP1-related disorders (STXBP1-RD)
Russ Novy 4/24/24 Russ Novy 4/24/24

Encoded Therapeutics highlights progress of preclinical programs for including STXBP1-related disorders (STXBP1-RD)

Read More
Capsida Biotherapeutics to Present New Data on its Wholly Owned Gene Therapy Programs in Genetic Epilepsy 
Russ Novy 4/22/24 Russ Novy 4/22/24

Capsida Biotherapeutics to Present New Data on its Wholly Owned Gene Therapy Programs in Genetic Epilepsy 

Read More
Strides in STXBP1: What Happened Last Month in STXBP1 Research?
Russ Novy 4/9/24 Russ Novy 4/9/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

Read More
STXBP1 Census - Q1 2024
Charlene Rigby 3/31/24 Charlene Rigby 3/31/24

STXBP1 Census - Q1 2024

Read More
Strides in STXBP1: What Happened Last Month in STXBP1 Research?
Russ Novy 3/12/24 Russ Novy 3/12/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

Read More
In the News: NAVIGATING THE SYSTEM
Russ Novy 3/11/24 Russ Novy 3/11/24

In the News: NAVIGATING THE SYSTEM

Read More
Strides in STXBP1: What Happened Last Month in STXBP1 Research?
Guest User 3/11/24 Guest User 3/11/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

Read More
In the News: $25,000 Grant Awarded to University of Richmond Researcher
Russ Novy 3/6/24 Russ Novy 3/6/24

In the News: $25,000 Grant Awarded to University of Richmond Researcher

Grant from the STXBP1 Foundation to use zebrafish for investigating the potential of repurposing FDA-approved drugs

Read More
Newer Posts
Older Posts

About Us

The STXBP1 Foundation is a parent-led 501(c)3 non-profit (EIN #82-1439459). We are dedicated to creating awareness and finding a cure for STXBP1 disorders.

Email

info@stxbp1disorders.org

Info

About
Newly Diagnosed
Clinical Trials and Research
News
Events
Blog

Action

Join Parent Contact List
Contact
Donate
Sign Up for Our Newsletter

Privacy Policy • Policy on Discrimination • Community Participation Guidelines

© 2026 STXBP1 Foundation. All rights reserved.