Russ Novy 5/20/24 Russ Novy 5/20/24

Over 3,000 People Have Signed our Petition to the CDC for an ICD-10 Code

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Russ Novy 5/13/24 Russ Novy 5/13/24

Cain Labs and Duncan Neurological Research Institute researchers find a novel first-in-class gene therapy alleviates symptoms in animal models of STXBP1 disorder

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Russ Novy 5/9/24 Russ Novy 5/9/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

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Russ Novy 5/8/24 Russ Novy 5/8/24

People Magazine Feature Article on Flo

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Russ Novy 4/24/24 Russ Novy 4/24/24

Encoded Therapeutics highlights progress of preclinical programs for including STXBP1-related disorders (STXBP1-RD)

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Russ Novy 4/22/24 Russ Novy 4/22/24

Capsida Biotherapeutics to Present New Data on its Wholly Owned Gene Therapy Programs in Genetic Epilepsy 

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Russ Novy 4/9/24 Russ Novy 4/9/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

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Charlene Rigby 3/31/24 Charlene Rigby 3/31/24

STXBP1 Census - Q1 2024

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Russ Novy 3/12/24 Russ Novy 3/12/24

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

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Russ Novy 3/11/24 Russ Novy 3/11/24

In the News: NAVIGATING THE SYSTEM

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