Exciting News: The STXBP1 Foundation is Growing!
See How the STXBP1 Foundation Board Has Expanded
STXBP1 STARR Webcast on Thursday, 8/17
Join live this Thursday or catch the recording afterwards
Three Take Aways from STXBP1 Summit+ 2023
STARR, ESCO, and building the STXBP1 momentum: Perspectives from 2023 STXBP1 Summit+
Call for Board Members
Call for Board Members
Highlights from the 1st European STXBP1 Summit and Researcher Roundtable
Get the Recap in our Science Center
A New Resource from our friends at FOXG1 Syndrome
A Feel Good Resource to Teach Inclusion
The role of genetic counselors in the mystery, hope, and heartbreak of neurogenetics
Here is what you need to know in 2023 from Beyond the Ion Channel STXBP1
Caregiver Connect Video Series
Watch this new video series developed for caregivers of any rare epilepsy.
Help Complete a New Study Available For Parents & Caregivers by April 15th
Our Quest for an ICD-10 Code for STXBP1-Related Disorders
The STXBP1 Brand Gets a Fresh Update
Read the design details, download the Style Guide, and use our new logos right away
Accelerate STXBP1 Disorders Research By Completing Your Surveys in the Xcelerate RARE Challenge
2022 Wrap Up and Look Forward
John Oldenhof recaps the Epilepsy Foundation research roundtable
New STXBP1 ENGAGE Research Study Sponsored by Encoded on Children's Experiences Living with STXBP1
A Fun First Nordics STXBP1 Family Meeting
Highlights from the Summit+ Researcher Roundtable 2022
