Make an impact on federal policy close to your home.
Share your rare disease story.
Meet other rare disease advocates.

Rare Disease Legislative Advocates (RDLA) organizes meetings with your Members of Congress and/or the Member’s staff during the congressional August recess. Virtual and In-Person meetings will take place between August 7th and 18th. All House meetings will be held in-person at the Representative’s district office and all Senate meetings will be virtual. The RDLA team also helps you prepare for meetings, provides legislative resource materials, and hosts pre-meeting training webinars. No prior experience is necessary.