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STARR Study: Information Webinar for Families

Learn more and have an opportunity to ask questions! Our speakers are James Goss, PhD, Foundation Scientific Director, and Jackie Steinberg, MPH, BSN, from our board who is leading our natural history study support team.

Attend using this Zoom link

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August 7

Rare Across America Congressional Events

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September 1

STXBP1 Disorders Awareness Month