The tradition continued. Third weekend of September in Ohio or virtually. Past details here: 3rd STXBP1 5K Run

We ran on Saturday, October 13 in Marietta, OH and virtually to help raise funds for our Foundation and our very first STXBP1 Scientific Conference in 2019.

The RARE Carousel was a unique partnership between Festival of the Children Foundation and Global Genes that provides an exciting and innovative way for RARE disease organizations to raise funds, cultivate new donors, and increase awareness. The STXBP1 Foundation participated in the 2018 RARE Carousel from Feb 1 – Mar 15.

The Live Venue was at Devola Park 820 River Road, Marietta, OH. Our Virtual Venue was run from Philadelphia PA 19130.