Orphan Disease Center 2021 Million Dollar Bike Ride Grant Awards Announced
The STXBP1 Foundation announces a new grant awarded of $154,753 to the Heller Laboratory of Neuroepigenetics at the University of Pennsylvania
The STXBP1 Foundation has provided $50,000 in funding to Children’s Hospital of Philadelphia (CHOP) to develop a Disease Concept Model for STXBP1 disorders
STXBP1 Foundation Awards 2 research grants to researchers at Columbia’s Institute for Genomic Medicine
Rarebase launches a neuroscience drug discovery platform collaborating with STXBP1 Foundation and 14 other rare disease patient organizations
COMBINEDBrain and Duke University team up to receive a prestigious FDA grant
STXBP1 Foundation and Ciitizen Partner on Natural History Study, Study Starts Recruitment April 16
4-Phenylbutyrate Clinical Trial Starting Recruitment
Orphan Disease Center 2020 Million Dollar Bike Ride Grant Awards Announced