Russ Novy 12/13/21 Russ Novy 12/13/21

The STXBP1 Foundation has provided $50,000 in funding to Children’s Hospital of Philadelphia (CHOP) to develop a Disease Concept Model for STXBP1 disorders

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Russ Novy 10/20/21 Russ Novy 10/20/21

STXBP1 Foundation Awards 2 research grants to researchers at Columbia’s Institute for Genomic Medicine

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Charlene Rigby 9/14/21 Charlene Rigby 9/14/21

Rarebase launches a neuroscience drug discovery platform collaborating with STXBP1 Foundation and 14 other rare disease patient organizations

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Charlene Rigby 5/22/21 Charlene Rigby 5/22/21

COMBINEDBrain and Duke University team up to receive a prestigious FDA grant

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Charlene Rigby 4/15/21 Charlene Rigby 4/15/21

STXBP1 Foundation and Ciitizen Partner on Natural History Study, Study Starts Recruitment April 16

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Charlene Rigby 2/20/21 Charlene Rigby 2/20/21

4-Phenylbutyrate Clinical Trial Starting Recruitment

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Charlene Rigby 1/31/21 Charlene Rigby 1/31/21

Orphan Disease Center 2020 Million Dollar Bike Ride Grant Awards Announced

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Russ Novy 11/23/20 Russ Novy 11/23/20

Rare Epilepsy Network (REN) Gets to Know STXBP1

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Charlene Rigby 11/17/20 Charlene Rigby 11/17/20

NORD Profiles STXBP1 Foundation President in Head of the Herd

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Charlene Rigby 10/3/20 Charlene Rigby 10/3/20

STXBP1 Foundation President Presents at Healx Webinar

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